Some of our favorite Internet resources relating to Tourette Syndrome are below. If you would like to recommend a useful Web site for listing on this page, please contact Connecticut TSA at (203) 912-7310 or e-mail us at ts@tsact.org

	Tourette Syndrome
	TS discussion groups
	Regional TSA chapters
	Education/advocacy—Connecticut
	Education/advocacy—national
	Health resources
	Bibliographies
	Research

Tourette Syndrome

	*TOURETTE SYNDROME ASSOCIATION INC.* Our parent organization. Information about TS, current treatment and research, news, pamphlets and videos, and a variety of other resources.   *NEW* View the webstream of the newly diagnosed seminar filmed at the national TSA conference in April 2006.
	Ask NOAH About Tourette Syndrome A-Z information resource published by the New York Online Access to Health project. NOAH features content in English and Spanish, with sections on basic facts, children's issues, diagnosis, genetics and treatment, including alternative therapies. Provides URLs to local TSA chapters in Connecticut, New Jersey and New York.
	GOSH Tourette Syndrome Clinic TS facts, treatment options, recommendations for parents and educators, and more from London's Great Ormond Street Hospital.
	Jim Eisenreich Foundation Site maintained by former baseball star Jim Eisenreich's foundation, which assists educators and parents in determining the educational needs for children with TS. Free downloadable resource guides are available for principals, counselors, teachers and parents to help those involved know what supports a child with TS may need at school.
	Patti's Picks Books Books about TS and by people with TS.
	Pandas Web site NIMH site devoted to pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections. The term describes the subset of children who have OCD and/or TS whose symptoms worsen following strep infections.
	Planet Tic Site with a youthful spin that promotes understanding and awareness of TS. Created by Danya International for students, parents and teachers.
	Tourette Friendship and Support Circle Interactive community that offers children and adults of TS families information, resources and a place to share personal experiences and make friends.
	Tourette-Syndrome.com Online community devoted to children and adults with features like a list-serve magazine, message boards, discussion forums and chat. Created by father of TS boy.
	Tourette Syndrome Camp Organization Nonprofit group that promotes camping opportunities for children with TS, OCD and ADHD.
	Tourette's Disorder *NEW* Comprehensive online resource with compelling Flash animation introduction on home page. Site has information on history, diagnosis and treatment, links to online support and blogs, and more.
	Tourette Syndrome—Now What? Engaging site maintained by mother of TS children. Be sure to sign her guest book.
	Tourette Syndrome "Plus" Web site published by clinical psychologist Leslie Packer. Comprehensive information about TS, advocacy, associated disorders (e.g., ADHD, rage), medications, school issues, and a lot more.
	Yale Child Study Center TS/OCD Specialty Clinic Offers clinical services for the treatment of TS, OCD and related disorders like ADHD. Web includes links to clinical information, summaries of recent publications, and details of research projects under way.

Back to top

	Adults Tic Talk E-mail groups for adults with TS.
	Kids-Teens Tic Talk E-mail groups for kids under 12 and teens with TS.
	Parents Tic Talk E-mail groups for parents of children with TS.
	Alt.Support.Tourette Unmoderated news group devoted to TS.

Back to top

	Long Island
	Massachusetts
	New Jersey
	New York/New York City
	New York/Greater New York State
	New York/Hudson Valley
	Pennsylvania
	Rhode Island
	Washington, D.C.

Back to top

View a summary of information presented at the resource fair during Connecticut TSA's 2002 annual conference.

	Bureau of Special Education and Pupil Services/Connecticut State Department of Education State bureau responsible for special education. Download A Parent's Guide to Special Education in Connecticut in PDF format. Other publications related to special ed available for download.
	Connecticut Parent Advocacy Center Inc. Statewide nonprofit organization that offers information and support to families of children with any disability or chronic illness, age birth through 21. Local affiliate of Pacer.
	Connecticut Yellow Pages for Kids With Disabilities Directory to online disability resources in Connecticut. Companion site to Wrightslaw.
	Learning Disabilities Association of Connecticut Inc. One of 50 state affiliates of national nonprofit organization that focuses on identifying causes, promoting prevention and encouraging effective intervention of learning disabilities.
	Office of Protection and Advocacy for Persons with Disabilities Independent state agency created to safeguard and advance the rights of disabled people in Connecticut.
	State Education Resource Center Centralized resource for individuals with special needs and allied professionals. Library includes materials on TS and ADHD. See SERC's extensive bibliographies.
	SPED*NET Network of parents who are interested in special education issues. Site has sections devoted to groups in New Canaan, Wilton and Darien, Connecticut.
	United Way of Connecticut Infoline 2-1-1 Comprehensive database of health and human services agencies. You can also telephone 211 at no charge.
	Yale Center for Children with Special Health Care Needs Coordinating center for Connecticut programs serving chronically ill or disabled children and their families. Collaborates with Connecticut Public Health and Social Services departments to provide a variety of resources and support services for children with special health care needs.

Back to top

	CHADD National nonprofit organization that provides education, advocacy and support for individuals with ADHD.
	Circle of Inclusion Information about the effective practices of inclusive educational programs for children from birth through age eight.
	Family & Advocates Partnership for Education New project that aims to inform and educate families and advocates about the Individuals with Disabilities Education Act of 1997 and promising practices. See the electronic Newsline newsletter available online.
	LD Online Web site on learning disabilities for parents, and for teachers and other professionals. Also, see the article about assistive technologies and the Individuals with Disabilities Education Act (IDEA).
	National Collaborative on Workforce and Disability for Youth Information about employment for youths with disabilities.
	National Initiative for Children's Healthcare Quality ADHD Toolkit Site sponsored by the American Academy of Pediatrics. Features downloadable handouts, assessment scales and more for parents, teachers and pediatricians who are concerned about a child who may have ADHD.

	Parent Advocacy Coalition for Educational Rights Umbrella organization of CPAC and other local affiliates. Seeks to expand opportunities and enhance the quality of life of children and young adults with disabilities and their families, based on the concept of parents helping parents.
	School Psychology Resources for Psychologists, Parents & Educators Comprehensive resource covering topics like ADHD, autism, functional behavioral assessment, psychological assessment and special education.
	Special Needs Secondary Schools Listing complied by Petersons.com of more than 50 secondary schools that serve students with disabilities. Note: Connecticut TSA does not endorse any of these schools and has not investigated them.
	Office of Special Education Programs/U.S. Department of Education Federal office that administers the IDEA special ed law. Download A Guide to the Individualized Education Program in PDF format.
	Wrightslaw Up-to-date information about advocacy for children with disabilities for parents, advocates, educators and attorneys.

Back to top

	ADDResource.com Metasite and search engine for ADD, learning disabilities and TS.
	Comprehensive NeuroTherapy Nonprofit organization that focuses on alternative or nondrug treatments for TS and other neurological disorders.
	Genetics Home Reference/National Institutes of Health *NEW* Genetics Home Reference is a service of the U.S. National Library of Medicine, part of the National Institutes of Health, an agency of the Department of Health and Human Services. It provides consumer information about genetic conditions.
	Medscape Offers clinical information, news, access to journals and other resources for medical specialties and drugs.
	National Organization for Rare Disorders Nonprofit health organization dedicated to the prevention, treatment and cure of rare "orphan" diseases. Site includes searchable disease, drug and organization databases; information about NORD programs; online newsletters; and relevant news briefs and policy updates.
	New England Journal of Medicine Provides access to abstracts from The New England Journal of Medicine research papers.
	Obsessive-Compulsive Foundation Inc. Branford-based international organization that seeks to educate the public, assist people affected by OCD and support research of causes and treatment.
	WebMD Drugs & Herbs Detailed information about prescription drugs, over-the-counter medications, supplements and herbs.

Back to top

	ADHD
	Conduct disorder, OCD and oppositional-defiant disorder
	Tourette Syndrome

Back to top

	Yale University team identifies gene that is associated with some forms of Tourette Syndrome. Read the research paper from Science and the news release from the national Tourette Syndrome Association.
	Neuroscience 2002 (link to Clinical Information page)
	Research news (by Rebekah Craig)

Back to top