Are you having trouble coping with Tourette Syndrome? Does someone in your family need the support of caring people? Is your child encountering difficulty in school?
The chapter has enlisted the help of volunteers whose lives have been touched by Tourette Syndrome. They maintain support groups and an online support community (*NEW*); operate a TSA phone line, where you can ask questions and get connected with other people in the TS community; and through a speaker's bureau, conduct outreach at schools and health care facilities. Remember that you are not alone.
Support Groups
Currently we have two active support groups for people with TS and their families, in Glastonbury and Newtown. Everyone in the TS community is welcome. Please call or e-mail the contacts for details or directions, and be sure to confirm the time and date before coming.
Newtown support group:
| When: | 7:00-8:00 p.m., 4th Monday of
each month Next meeting: To be announced |
|
| Location: | Trinity Episcopal Church, John Beech Room 36 Main Street Newtown, Connecticut 06470 |
|
| Contact: | Laura Main, (203) 270-9348, lfmain@charter.net *E-mail preferred* |
Please contact Laura if you are interested in attending the group. You can view and print Laura's directions.
Wilton support group: *GROUP BEING REORGANIZED*
The support group that was successfully run by Chris Phelps-Thiry at the Wilton Library may continue to operate. A parent of a TS child has expressed an interest in reviving the group and serving as its co-leader if she can locate another volunteer to share the responsibility.
Please contact Fran Apfel, below, if you are interested in helping her operate the support group.
| When: | TBA | |
| Location: | Wilton Library 127 Old Ridgefield Road Wilton, Connecticut 06897 |
|
| Contact: | Fran Apfel, Ph.D., (914) 671-8808, drapfel@aol.com |
ALL GROUPS: Please call the contacts for details or directions, and be sure to confirm the time and date before coming. If you are interested in forming your own group, telephone the chapter at (203) 912-7310 or e-mail us at ts@tsact.org. We can help to put you in touch with other people in your area.
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Online Support Community
Join our new Yahoo! Health Groups online support community called Tourette Connecticut. Everyone with an interest in TS is welcome.
Visit Tourette Connecticut to:
- connect with other folks whose lives are touched by TS;
- find out about upcoming activities for the TS community;
- learn about TS and its management;
- participate in discussions about mediation, holistic remedies and medication;
- find out when new issues of the CT TSA newsletter are available; and
- be alerted about new literature, media events or medical breakthroughs.
To join Tourette Connecticut click the Yahoo! Groups button below.
TSA Phone Line
The chapter's phone line is operated by Joann Cohen, who will answer nonmedical questions about Tourette Syndrome. Joann can also connect you with people in the TS community who are available to chat and provide personal support. You can reach her by calling our chapter at (203) 912-7310.
Speaker's Bureau
Our volunteer speakers organize in-service events at schools and clinics with a view to providing accurate, unbiased information about the disorder to teachers and medical professionals. We also offer a classroom intervention program designed for children ages 7-12. If you are interested in scheduling a presentation, please call our chapter (203) 912-7310 or send us an e-mail.